Your contribution will help make this program a reality

Fueling the Care for People with Myasthenia Gravis in Michigan

Myasthenia gravis can impose significant burdens on patients and families that extend beyond neuromuscular symptoms. The combination of disease-related physical, emotional, employment, health insurance, financial, and lifestyle changes can mount significant challenges. Professional healthcare navigation and social work interventions have proven to offer comprehensive solutions to these challenges. By integrating these clinical specialists into the MG care team, this pilot program will address the spectrum of patient needs to improve patient experience.

MG-MI Fueling the Care for Myasthenia Gravis in Michigan represents an investment in patient-centered comprehensive care for rare diseases. The social worker and patient navigator with MG expertise will be a supportive listener and provide individualized guidance and referrals to address patient care, clinical integration, access to treatment, and advocacy in payer issues that deny or delay treatment for people with MG. We call upon our donors and greater Michigan community to support this innovative pilot program.

MG-MI is seeking initial funding of $90,000 for a 36-month pilot. By funding current foundation commitments, we have already received a $45,000 matching grant commitment. We are asking for community support to help us transform MG care in Michigan.

For more information, contact MG-MI at info@mg-mi.org or call 616-956-0622

Expected Outcomes & Impact

For Patients

  • Improved disease understanding to aid treatment adherence and decision-making
  • Enhanced quality of life through psychosocial and resource support
  • Reduced financial burden through referrals to assistance programs, disability benefits, and employment accommodations
  • Maintained functional independence when possible

 

For Health Systems

  • Increased neurologists’ knowledge of symptoms and treatments for myasthenia gravis, and best practices of insurance approval and prescription processing
  • Increase patient access to neurologist-prescribed treatment(s) including FDA-approved therapies for MG across the state
  • Reduced emergency department visits through proactive disease management guidance

 

For Community 

  • Increased awareness of myasthenia gravis in the Michigan healthcare community
  • Development of Michigan-specific MG resources and support networks
  • Regional access to clinical specialists through a “Care on Call” model
  • Training opportunities for social work students in rare disease care