Circle of Friends
CIRCLE OF FRIENDS GUIDELINES PURPOSE: To facilitate communication between patients and/ or their significant other on issues of living with Myasthenia Gravis by sharing with and learning from others. It is also a connection for patients who may not have the opportunity to attend Information and Support meetings. You may have your name added or removed from the list at any time by informing our office.
The Circle of Friends is a wonderful way to connect with others, while keeping in mind the following guidelines:
- When phoning, be courteous as to the time of day, length of conversation and frequency when contacting others. Be aware that the person you call may not have as much time to talk as you.
- Respect others privacy. Do not probe. Let the other divulge what information they are comfortable in giving out.
- Limit your discussion to your personal dealings with MG.
- Should issues arise that make you uncomfortable, please inform the chapter office. All matters will remain private and confidential.
- Sharing and learning the medication and regimen of others are positive, but remember that you should consult with your physician before making any change in your own program.
The list is for you to use if you need or want to speak with someone about MG. All the folks on this Circle of Friends list are interested in and willing to be contacted by anyone needing to talk about MG, whether a patient, family or friend. Folks on the list have indicated what avenue of contact is O.K. – phone, mail and/ or e-mail.
The Circle of Friends is a wonderful way to connect with others! But, please keep in mind the guidelines.
Make a Donation
Federal ID# 38-2110097
What does your donation provide?
Information and Support meetings in several cities throughout Michigan. Patients and their families and friends learn about the illness by sharing tips on living with the condition.
Educational materials for patients, the public and medical professionals.
A network where patients connect with each other through the "Circle of Friends".
Newsletters featuring activities, medical and/ or patient oriented articles.
Medication Assistance Program to provide financial support of medications to treat MG.
Assist newly diagnosed patients in adjusting to MG and coordinating in-hospital visits upon request.
We also support research to find the cause and cure of MG. Working together we move toward a world without MG.Annual Appeal
Run, Walk and Family Fun as we 'move toward a world without MG!'
The races will start at 10:00 AM on June 3rd 2017. Same day registration and packet pick up will begin at 9:00 AM (subject to change). There is a 5K Run and a 1 Mile Walk available for participants.
Saturday, August 5th 2017 at North Kent Golf Course.
Raising funds and Awareness for Myasthenia Gravis! Our 27th Hoon Open! Thank you for the support- Hoonhorst Family and Hoonhorst Concrete!
- Help with Mailings of meeting notices or newsletters
- Assist in the office
- Newsletter and website information, links, stories, etc.
- Aid in events and event planning
- Make donation contacts for events